Data Security at UB — De-identified vs. Coded Data

Conducting human subjects research studies at the University at Buffalo may involve the use of personally identifiable data. This UB CTSI Watch and Learn educational module video outlines:

  • The definition of personally identifiable information
  • The differences between coded, de-identified, and limited data sets
  • IRB submissions with these data sets
  • Information on keeping these data sets safe

Presented by Zachary Chakan, IRB Administrator, University at Buffalo

Running Time:  14 minutes

Questions?
 Contact Valerie Bailoni, UB IRB Helpline, ub-irb@buffalo.edu or 716-888-4888; Zack Chakan, IRB Administrator, znchakan@buffalo.edu or 716-888-4874; or Marchelle Brooks, MPH, and Alexis O’Brien, CTSI Clinical Research Facilitators, ctsihelp@buffalo.edu or 716-829-4357.

Additional resources:
 UBIRB Click Library (https://www.buffalo.edu/research/research-services/compliance/irb/click-irb.html):

  • Tips from the IRB - De-Identified Coded Limited Data Sets (found under the “General” tab)
  • HRP-613-HIPAA-Certificate of Deidentification (found under the “General” tab)
  • HRP612-HIPAA-Waiver (found under the “Templates” tab)